Closing the Gap through Changing Relationships

Patient record access: turning it on, sharing the learning

In brief

Today 60% of GP practices have the technology in place to allow patients 24-hour online access to their own patient records, but so far only 50 UK practices have seized the opportunity.

For many, the notion of allowing patients access to their own medical records raises fears of increased workloads, misuse of data and harm to patients or the practice. But evidence and experience shows that these concerns are unfounded, and that the approach improves quality of care, shared decision making, safety, effectiveness and patient experience.

This project will work with practices to create a cultural and attitudinal shift to make record access standard practice.

Why is this project needed?

There is clear evidence that enabling online patient access benefits patients and GP practices alike. Being able to view their medical records from anywhere, any time makes people feel more in charge of their own health and improves relationships between patients and their practice.

There is also some evidence that people who have access to their records self-care better too – so, for example, people are more likely to stop smoking or comply with their medication.

The notion is not new – maternity patients have had hand-held records for many years, and renal medicine has developed online access for patients that is widely used.

In the United States, millions of patients access their records, with significant benefits. Practices worry that patients will not use the information properly, or that the system might increase workloads or lead to loss of control. There are concerns about sharing records with particular groups, and fears of legal consequences.

However, the system is designed to cope with data protection issues, and experiences from practices offering record access show that there are few problems.

Evidence shows that the fears of litigation, complaints or misunderstanding of information have not come to fruition, and that barriers can be overcome if concerns are recognised and understood, and adequate support and learning provided.

Comments
Good in principle, but does it increase the risk of access by hackers?
Thank you for your question Carol.

No online activity is totally safe. However, this system is very secure, having been stress-tested to international standards.

There are a number of specific safeguards:
• a person can only view one page at a time. If they were hacked at the point of viewing, only one page could be seen.
• it is not possible to store any of the record on your computer.
• the record is not held in any place separate to where your own GP record is stored – mostly, at the moment, in your GP’s computer in the surgery. There is no separate store such as the NHS Spine.

Hi Carol

I am the Project Manager for this project. Further to Fiona's comment above, it should be noted that the record access system we are working is different to the 'summary care record' that you may have heard about and that has received a lot of publicity in the press.

Kind regards

I am keen to help with this work and to integrate with my own planned trials in 4 or 5 practices next year.

I am known to Brian Fisher and he has a copy of my paper - available via http://threewinsacademy.com/An_Information_System_For_The_Self-Managing_Patient.pdf

My approach is to apply the principles of improvement science to enable patients to self-empower.
Post a comment
 
Back to top