‘We have still not moved away from a culture of blame’. So says Robert Francis in his erudite, if voluminous, report into the failings at the Mid Staffordshire NHS Foundation Trust published earlier today.
He gets straight to the point in his report. The culture of the NHS still has too many negative aspects to it:
All this must change, he quite rightly states.
He has some excellent ideas for how this can be achieved. Mercifully, he makes it clear he does not believe that structural change is the answer. He states it is unlikely that any structural change could enhance patient safety, and goes on to make the telling point that within any system, of whatever design, there needs to be a relentless focus on ensuring patient safety.
The most welcome recommendation he makes is that the NHS Constitution should lie at the heart of the changes needed. 'The common values of the service must be enshrined in and effectively communicated by the NHS Constitution, and owned and lived by all members of the service', he states in the report. The Constitution should be the first reference point for all NHS patients and staff. As a member of the Expert Advisory Group on the NHS Constitution working with the Department of Health to modernise and promote a revised Constitution, this is music to my ears.
There are many other recommendations of real merit. For example, he rightly recognises the value of peer review, often neglected in a culture of top down performance management. It has, he says, ‘a far more fundamental role in changing behaviour to ensure a consistent and caring culture throughout healthcare services’.
He also helpfully recognises that there should be an increased focus on a culture of compassion and caring in nurse recruitment, training and education. He makes the valid point that training and continuous professional development for nurses should apply at all levels from student to director. We know how access to this is currently difficult, if not impossible, for many nurses. It will have resource implications but is vital to improve the quality of care.
It is gratifying too to see him recommend that the GMC and the NMC should ensure that patient safety should become the first priority of both medical and nursing training and education.
But as I waded through his report (the executive summary alone extends to 117 pages), I began to wonder: where is the patient in all this? I couldn't help but form an impression that the patient was there to be 'done unto'. In the case of Mid Staffordshire, done unto neglectfully and appallingly. In that context, Francis' quest was to find ways of ensuring that this would never happen again, that the patient in future would be put first, and everything done by the NHS and everyone associated with it should be informed by this ethos. Yet I could not help feeling that, in Francis' vision of the future, the patient remains something of a passive onlooker, not an assertive participant.
Quite properly, he says that, in the future, staff should put patients before themselves; they should do all in their power to protect patients from avoidable harm; and they should be open and honest with patients. Patients should be given information on which to make informed decisions. They, and the wider public, should be involved in decisions, both nationally and locally, about how care and treatment should be provided. Interestingly, specifically in relation to the care of elderly people, he also advocates a greater role for patients' families and carers.
However, nowhere does he say that patients should be involved in decisions about their care and treatment. Nowhere does he make it clear that it is the patients who should be in control. Nowhere does he advocate the encouragement of supported self management. This is a missed opportunity to promote a step change in the way in which care is delivered in the NHS. It runs the risk of an undue reliance on the system getting it right for the patient. We know all too well that this is not enough.
They will vote with their feet if an NHS hospital is not good or safe.
The current NHS construct is all wrong for patients but a sinecure for staff
Otherwise the public will rightly see their local healthcare organisation as no better than the food / drinks company "who tick their regulatory box" by printing "please drink responsibly" on their 4 can pack of 9% ABV lager.
The general public should be free to demand better, safer care, but also understand / accept that this is made no easier with government austerity cuts...
The patient not only requires a voice, but power.
As Martin Luther King said:
"Love without power is mere sentimentality: love with power is justice."
However, I see this as being very difficult to achieve unless we have a patients' champion - a patients' matron - whatever the terminology.
Someone who is able to go round the wards, who is not attached to the NHS, but who will be able to talk to patients, note points of concern that are repeatedly raised, and be able to report them to CEOs.. An Advocate - an enabler - would go a long way.
I spent a year working with a CCG to embed shared decision making and co-created outcome measures into integrated care for long term conditions.
What happened....
http://www.alderoak.co.uk/20279.html
I have found enormous indifference from many when writing and talking about this sort of thing a decade ago. Maybe we now have a ‘burning platform’?
I do worry many in healthcare still don’t get it – or don’t care, including clinical staff. I saw this personally in December last year when going to A&E with a freind.
Turning a hospital from a place desgned for the advancement of personal careers for staff into a real patient focused institution will be hard. I liked Christina Patterson’s piece in The Independent this week. It gave me hope.
My fear is the whole post-Francis era becomes bureaucratised into reports and big consultancy. For me the key is asking, passionately and continuously, what more could we do to get thigns right? I am convinced if the right questions are curiosly asked lots will fall into place as people learn together.
I have formed my own professional values in diverse work as a physician over the past four and one-half decades. I began as a General Pediatrician. Subsequently I learned in my work as a clinical practice organizational leader, a health services researcher, a public health administrator, a governing director and for the last three-plus decades as a developer and teacher of approaches to the measurement and improvement of the quality, safety and value of health care. The settings for my work have been largely in the U.S., but have also included work in Norway, Sweden and more recently the Health Foundation in the U.K. I am an ‘outsider’ to many in the UK, but an ‘insider’ to a lifetime of work in the world of quality, safety and value improvement of health care and to W. Edwards Deming’s thinking about improvement.
In that context, I offer five reflections:
1. Health care is at the same time a simple, complicated and complex phenomenon.
To the extent that evidence supports policy, incentives—particularly financial incentives—work best for simple things and tend to have unreliable (including opposite) effects on desired change in complex things.
Designers of incentive programs are clear that to work constructively on even simple things, incentives must focus on just a few variables to achieve maximum effect. Consider the situation of a pediatric doctor who needs to do hundreds of different things well in a day: incentivizing performance about three of them will distort the work on the rest of the good work of that professional, if its intended effect is realized. That type of incentive-induced distortion of ‘good’ health professional work is documented in the Francis report.
Financial incentives to ‘care better’ for another human being have yet to demonstrate their effectiveness under the widely varying circumstances of the real world—current public & political rhetorical volume notwithstanding.
Using ‘simple’ solutions to ‘complex’ problems may be good short-term politics, but is not likely very effective long-term policy.
2. Measurement is a reductive art.
When numbers are used to describe a service or a product, they are usually related to discrete aspects or attributes of that service or product. Deming, a statistician, was keen to encourage people to use measurement for learning and for the improvement of what they were ‘making.’ Lord Kelvin was on to something when he reminded us that until we can measure something, our knowledge of it is superficial.
But today we live in a festival of measurement which often obscures the basics of good measurement, disconnects measures from their designed use and diminishes the learning that might arise from good measures used well. Further, they invite the assumption that physical distance between the care and those trying to understand, monitor it is inconsequential. No measures substitute for direct observation by experienced, sensible, sensitive observers.
Paying health professionals for the presence or absence of certain measured attributes of a service or product is very risky. It risks distorting the ‘goodness’ of a given service to those attributes measured. Measuring the professional performance involved in creating a service for diverse individuals and paying on the presence/absence of one of those attributes is tempting, but as the Francis Report documents can confuse what is important in the work and can actually harm patients.
3. Outcomes matter when trying to improve the systems and processes of care related to them.
Health outcomes are partly related to the professionals and their work, partly related to the natural history of the relevant disease biology, partly related to the genetic make-up of the individual and partly related to the social support and structures that contribute to the context of the person with the illness. To pretend that it is simpler than that unfortunately contributes to a sense of professional futility about the urgent need to scientifically engage the improvement of health care.
A shared conversation about the reality of how outcomes are produced, modified is fundamental to attracting the obligatory full professional participation in the needed process(es) of change.
4. Rapid-cycle leader turnover in health care organizations usually contributes to a preservation of the status quo in those organizations.
The work of health care today occurs in systems. Designing, introducing, evaluating, and re-designing change to achieve desired results in the performance of those systems requires leadership that evokes a culture of trust and respect. Leaders must attract the energies of those needed to make and secure the needed changes.
External frustrations with change requiring varying lengths of time lead to shorter-length leadership cycles and an internal avoidance of changing the ‘hard’ things to change and an overdependence on policies of ‘leader replacement’ to achieve needed systemic change.
Rapid-cycle replacement of leaders may seem politically wise, but the reality is that short-term leaders have difficulty making big change in complex organizations. The Francis report suggests that ‘hard-to-change,’ ‘big’ things probably need to be changed.
5. ‘Patient-centric’ care is an inviting label for health care that can acknowledge the centrality of focus on the patient’s needs, but can also invite a distorted view of professional work.
It can also make us think that ‘care’ is some form of a professionally created patient-related ‘object’ for patient-consumers to be ‘satisfied with.’ Professionals don’t make health care objects.
As Lawrence Henderson observed in 1936: ‘Professionals and patients are members of the same system.’ Patients and professionals are in relationship working together to co-produce reductions in the burden of illness.
Until we begin to honor the wisdom of an ancient teacher, Abba Felix: ‘We must create spaces in which we practice obedience to the truth,’ we are not likely to learn together about the requirements for real change in health care. We will not make lasting progress and may contribute to the need for even more inquiries about yet more horrific situations.
Paul Batalden, M.D.
Emeritus Professor, The Dartmouth Institute of Health Policy and Clinical Practice
Dartmouth Medical School, USA
Chair, Improvement Science Development Group
The Health Foundation, London