• Run by University Hospital Southampton NHS Foundation Trust, in partnership with NHS Southampton City Clinical Commissioning Group.
  • An online service for inflammatory bowel disease (IBD) patients at the Trust.
  • Aiming to transform the delivery of care for patients with IBD, improve patient experience, and increase the efficiency and capacity of the clinical service.
  • An online supported self-management system will provide disease information, access to results and diagnostic tools, and advice from specialist nurses.
  • This project will run from January 2017 to April 2018.

Inflammatory bowel disease (IBD) affects one in every 250 people in the UK. The two most common forms of IBD are Crohn’s disease and ulcerative colitis – both are lifelong conditions with no cure, and have significant impact on people’s quality of life.

When patients are diagnosed with IBD they need access to healthcare professionals who have specialist knowledge and understanding of the condition, and it can be frustrating if they have to explain their condition and symptoms to a succession of different doctors. Patients often wish to discuss the impact of IBD on their life, not just the management of their physical symptoms.

The majority of IBD patients are managed in secondary care and, because of the unpredictability of the condition and the need for cancer surveillance, are kept under review.

This project by University Hospital Southampton NHS Foundation Trust aims to improve care for IBD patients at the Trust by introducing an online supported self-management system – My Medial Record.

My Medical Record empowers patients to effectively self-manage their condition. This highly personalised and customisable tool features up-to-date disease related information, shared journals with key questions to monitor symptoms, access to specialist nurses through secure messaging, and access to results and diagnostic tools.

The tool has been trialled with prostate cancer patients. This project will see the tool being used by IBD patients and will replace the traditional outpatient follow up service with virtual care. Face-to-face appointments will still be provided if requested by the patient or if the clinical team feel it is necessary.

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