Informed decision making for children with high risk brain tumours: A prospective study of the exchange and processing of information amongst parents, children and clinicians providing guidance for clinical consultations.

Exploring decision making for children with high-risk brain tumours Led by Professor Myra Bluebond-Langner at the UCL Institute of Child Health Due to complete in December 2018 The Health Foundation is working with Professor Myra Bluebond-Langner at the UCL Institute of Child Health, ...

Independent evaluation of the feasibility of using the Patient Activation Measure in the NHS in England – early findings

This study aimed to evaluate how six health care organisations used the Patient Activation Measure (PAM) to help provide more personalised care and to measure the effectiveness of interventions to increase people’s knowledge, skills and confidence in managing their health. The study was undert...

Insight 2013: Video-based communication research and training in decision-making in supportive and palliative care (VERDIS)

Two year research project on shared decision making in end of life settings. Working with the Sue Ryder Care Centre for the Study of Supportive, Palliative and End of Life Care at the University of Nottingham. Part of £1.6 million open call Insight 2012 research programme, which aims to ge...

Person-centred care: from ideas to action

Carried out by ICF GHK, in association with Professor Judith Hibbard and Professor Mike Bury, this research aimed to bring together a picture of the evidence and examples of what works and why in shared decision making and self-management support.

Reducing hazards associated with the transition of young people with long-term conditions into adult services

North west England
Led by the Advancing Quality Alliance (AQuA), this project aimed to reduce the harm associated with transition from children’s to adult services for young people living with long-term conditions.

Endoscopy pathway

Run by the Gastroenterology department at Great Ormond Street Hospital, this project focused on optimising patient and carer experience of the endoscopy pathway from decision to admit for investigation to communication of results and agreed management plan. The work resulted in a re-design of adm...

Developing a computerised decision making tool to help with decision making around place of birth (MyBirthplace)

South east England
Led by Portsmouth Hospitals NHS Trust in partnership with Solent University, this project aimed to help women and their partners to make decisions about place of birth and support effective planning of maternity services. The team d eveloped a decision making tool which could be accessed online o...

Shared decision making in child and adolescent mental health care

Run by the Child and Adolescent Mental Health Services (CAMHS) Evidence Based Practice Unit at University College London and the Anna Freud Centre, partnered by the CAMHS Outcomes Research Consortium and YoungMinds, this project aimed to improve quality in child and adolescent mental health care ...

North East of England primary care Collingwood and Central Surgeries: methods for changing clinician behaviour

North east England
This case study was provided by Newcastle upon Tyne NHS Foundation Trust and discusses its project to find additional ways of reminding clinicians about shared decision making and encouraging more of this activity. The project's approach was to code consultation behaviour, using the national prac...

Newcastle Urology: changing attitudes with information for patients

North east England
This case study was provided by Newcastle upon Tyne NHS Foundation Trust about their project to help patients with enlarged prostate understand their condition and the types of treatment available. The team implemented decision aids developed by the NHS, adding them to the clinical pathway.