- Run by St Luke's Hospice in partnership with Basildon and Thurrock University Hospitals NHS Foundation Trust.
- Focused on liver disease management in the community/hospice setting in South West Essex.
- Aimed to improve care for people with advanced chronic liver disease through timely access to support services and interventions, and hospice-based clinical and therapeutic services.
- Project ran from January 2016 to August 2017.
Liver disease is the third highest cause of mortality in working age adults, and palliative and end-of-life care for people with advanced liver disease (ALD) is often poor.
This project involved implementing a shared care pathway between Basildon and Thurrock University Hospitals NHS Foundation Trust, and St Luke’s Hospice.
It gave 36 patients and their carers access to supportive care services at the Hospice, highlighting a significant unmet need and achieving improved outcomes for patients. Those who deteriorated or died on the project had improved end of life care with all having an opportunity to discuss their end of life care wishes.
Challenges included the initial time constraint for project completion, but this was addressed by a project extension, enabling demonstration of the full impact of the intervention.
A successful partnership between Marie Curie Palliative Care Research Department (MCPCRD) and the Hospice project team resulted in a comprehensive evaluation of the project.
Patients and carers embraced being part of the project, with significant learning gained from their shared experiences.
ALD patients and their carers will continue to be supported by the Hospice through the shared care pathway. Funding is being sought to establish a clinical nurse practitioner to work with the advanced nurse practitioner at the Hospice.
For more information about this project, please contact Virginia Campbell, Specialist Nurse Practitioner, St Luke’s Hospice, Basildon.
About this programme
This programme supports up to 23 projects with up to £75,000 to test and develop innovative ideas and approaches, put them in...
You might also like...
Health Foundation response to NHS England performance statistics.
Our latest research explores the connection between older people living alone and health care use.
December 2018 Chart of the Month. We examined the characteristics of people aged 65 or older living alone and the impact that...
Health Foundation @HealthFdn
1 in 3 older people in the UK live alone. Our latest research finds that they make greater use of health care serv… https://t.co/Psw4V2Gs7IFollow us on Twitter
Work with us
We look for talented and passionate individuals as everyone at the Health Foundation has an important role to play.View current vacancies
The Q Community
Q is an initiative connecting people with improvement expertise across the UK.Find out more