My Medical Record – Inflammatory Bowel Disease

  • Run by University Hospital Southampton NHS Foundation Trust, in partnership with NHS Southampton City Clinical Commissioning Group
  • Aimed to improve inflammatory bowel disease patient experience, and increase the efficiency and capacity of the clinical service
  • Introduced an online supported self-management system that connects to the Trust’s personal health record, allowing the team to manage their patient cohort, and giving access to disease information, results and advice for patients
  • Ran from January 2017 to April 2018

Inflammatory bowel disease (IBD) affects one in every 250 people in the UK. The two most common forms of IBD are Crohn’s disease and ulcerative colitis – both are lifelong conditions with no cure, and have a significant impact on people’s quality of life.

The majority of IBD patients are managed in secondary care and, because of the unpredictability of the condition and the need for cancer surveillance, are kept under review.

This project by University Hospital Southampton NHS Foundation Trust looked to improve care for IBD patients at the Trust and increase capacity to manage long-term conditions.

A virtual supported self-management pathway was introduced, using My Medical Record (MyMR), a cloud-based online system. It connects to the Trust’s systems and pushes digital information into the patient’s record, for example, results and letters.

The project aimed to transition 10% of appointments that are currently provided as telephone follow up onto MyMR. The patients are those who are not seen face to face in the clinic, but who are reviewed on an annual basis.

MyMR helps IBD staff to manage their patient cohort and their current status and empowers patients to effectively self-manage their condition.

There are now over 450 IBD patients registered with MyMR and patient log-ins to the system have continued to increase.

The main challenges faced were around making contact with the patients to engage them with the project, and also issues around data collation, privacy and consent.

The project now forms part of an overall Trust strategy to implement virtual supported self-management for follow-up care.

Contact information

For more information about this project, please contact Kevin Hamer, IT Development Service Manager, Southampton General Hospital.

About this programme


Innovating for Improvement

This programme supports up to 23 projects with up to £75,000 to test and develop innovative ideas and approaches, put them in...

You might also like...


Fixing the UK's broken social care system

The decisions we make about technology today will have implications for the entire social care system, says Lydia Nicholas, f...


Artificial intelligence in the NHS: getting the priorities right

The NHS’s new AI lab needs to focus on the needs of patients and the health system, argue Adam Steventon, Sarah Deeny, Josh K...

Journal article

Simulation TRaining for Operative vaginal Birth Evaluation

Study protocol for an observational stepped-wedge interrupted time-series study.

Kjell-bubble-diagramArtboard 101

Work with us

We look for talented and passionate individuals as everyone at the Health Foundation has an important role to play.

View current vacancies
Artboard 101 copy 2

The Q Community

Q is an initiative connecting people with improvement expertise across the UK.

Find out more