Unfortunately, your browser is too old to work on this website. Please upgrade your browser
Skip to main content
  • This project commenced in September 2017 and ran for 15 months, with further funding provided in December 2019 to extend the project to March 2021.
  • Led by University Hospital Southampton NHS Foundation Trust, in partnership with Solent NHS Trust.
  • Aims to improve communication and integration across various care settings, improve patient care and increase self-management capabilities.
  • Initially implemented with 500 patients living with long-term neurological conditions, and will be extended to include people with young-onset dementia and Huntington’s disease, and those with general neurological conditions.
  • Patient-held, personalised, online care plans created for patients.

Complex long-term neurological conditions often require the input of several health care teams across primary and secondary care settings. Personalised care plans allow for integrated care planning and improved communication between the different health care professional teams.

The proportion of people with long-term neurological conditions who feel involved in making choices about their health services, who are offered a care plan, or who feel that their health care professionals work well together, is declining. In the 2015 GP survey, people with neurological problems were less likely to feel they were adequately supported than people with other long-term conditions.

This project, led by University Hospital Southampton NHS Foundation Trust, has created the opportunity for personalised, online integrated care plans for 500 patients living with long-term neurological conditions.

Patients were recruited by their health care teams based in both hospital clinics and community neurology care services.

The project used the Trust’s existing patient online service (My Medical Record – myMR) as a platform to allow health care professionals and patients to create, access and manage individual care plans. The platform interfaces with hospital and community systems to automatically upload relevant documents, and patients are encouraged to add personal information and preferences. In addition, patients are encouraged to complete online health surveys to identify changes in health outcomes. In time, this will improve communication and care planning between multidisciplinary care teams and patients.

In the initial project, patients and staff quickly engaged with the functionality of the platform and gave positive feedback that the platform is useful to them.

The project is now being scaled up across the Wessex region (Hampshire, Isle of Wight and Dorset) to support all patients with a neurological condition to access MyMR, including patients with young-onset forms of dementia and Huntington’s disease. An evidence base will also be developed for the scale of generic digital platforms across national neurological services.

Contact information

For more information about this project, please contact Dr Christopher Kipps, Consultant Neurologist and Honorary Clinical Lecturer, University Hospital Southampton NHS Foundation Trust.

About this programme

You might also like...

Kjell-bubble-diagramArtboard 101 copy

Get social

Follow us on Twitter
Kjell-bubble-diagramArtboard 101

Work with us

We look for talented and passionate individuals as everyone at the Health Foundation has an important role to play.

View current vacancies
Artboard 101 copy 2

The Q community

Q is an initiative connecting people with improvement expertise across the UK.

Find out more