Carer Skills Passports for carers of children and young people with complex long term conditions

This project aims to provide quality assured, standardised training in order to develop a safe, effective, flexible workforce providing person centred care in the most appropriate setting.

A self-management digital platform for children and young people with ADHD

This project aims to improve quality of care and self-management of children and young people with ADHD and their families.

Positive Reporting and Appreciative Inquiry in Sepsis (PRAISe)

This project aims to improve early sepsis management and antimicrobial stewardship.

A patient-centred checklist to promote safe, high-quality practice and improved outcomes

South west England
Run by University Hospital Southampton NHS Foundation Trust, in partnership with the Universities of Southampton and Sheffield, Health Education Wessex, Wessex Collaboration for Leadership in Applied Health Research and Care, Academic Health Sciences Network and the Sheffield Emergency Care Fo...

Quantifying parental concern to strengthen their voice

Midlands
Led by Birmingham Children’s Hospital NHS Foundation Trust, this project aimed to involve parents and carers more purposefully in their child’s care and to achieve earlier identification of deterioration in a child’s condition, while reducing unnecessary parental anxiety. The team developed a com...

S.A.F.E: Situation Awareness For Everyone

London
Led by the Royal College of Paediatrics and Child Health, supported by UCLPartners Academic Health Science Network, and based at specialist children’s hospitals including Great Ormond Street Hospital, this project aimed to improve outcomes for acutely unwell children on paediatric wards, and redu...

Improving the Ambulant Duchenne Muscular Dystrophy pathway

London
Run by the Neuromuscular team at Great Ormond Street Hospital, this project aimed at improving the experience of boys with Muscular Dystrophy who are still ambulant (able to walk). The work focused on the care received at six-monthly follow up appointments/clinics.

Acute assessment for children

North west England
Aimed to improve the experience of patients arriving at Accident and Emergency (A&E) with abdominal pain, this project focused on reviewing the whole patient pathway from presentation at A&E, to either discharge at A&E or admission on to a ward. The project used both qualitative and quantitative ...

Promoting patients’ priorities through user generated quality of life measures (My QuOL-T)

South west England
This project, led by Children’s Hospice South West in partnership with the University of West England, aimed to support families affected by childhood life-limiting conditions to monitor issues that have an impact on their quality of life, and to improve communication with health care professiona...

Doctors in training leading quality improvement: families reporting critical incidents and near misses

London
This project, led by Great Ormond Street Hospital for Children, aimed to improve the identification of adverse events and near misses, and to reduce the possibility of adverse events. The team developed a web-based questionnaire to engage families and patients in the reporting of safety concerns.

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