Developing home-based Parkinson’s care

University Hospitals Plymouth NHS Trust

This project is under way, and will run until March 2020.

  • Project led by University Hospitals Plymouth NHS Trust, in partnership with Cure Parkinson’s Trust, Flourish Workplace, Sheffield Hallam University, Global Kinetics Corporation, Parkinson’s UK, Fre-est Ltd, Radboud University (Netherlands), South West Academic Health Science Network and UCB Pharma Ltd.
  • Will introduce a new way of working for Parkinson’s nurses.
  • Home-based care using new technology will better meet the needs of patients and carers, and improve support for staff.

People with Parkinson’s disease (PD) are more likely to be admitted to hospital and have a prolonged length of stay, and have increased mortality during admission. Most admissions are related to falls, chest infections and urinary infections. 

Guidelines suggest that people with PD should have a specialist review at least every six months. However, the caseload is often too high to provide this, and geographically large rural caseloads, such as in Plymouth, add to the pressure. 

This project will introduce technology to enable the delivery of home-based assessment and care for people with PD in the Trust’s outpatient services. The Parkinson’s Kinetigraph (PKG), developed by Global Kinetics Corporation, will be used. This is a wrist-worn device which measures movement parameters, which patients wear continuously for six days. Patients will also be given a non-motor symptom questionnaire.

Data from the assessments will be evaluated by the remote care team at the Trust, who will liaise either with the patient directly, or via the community nurse specialist, to implement any required changes to therapy. 

A key component of the service will be patient, carer and staff education, supporting self-awareness and enablement. An education package will be produced, incorporating information on triggering contact with patients, self-management strategies for non-motor symptoms, the importance of maintaining activity levels, and how remote monitoring works.

The service will be delivered in the Trust’s three community services: Plymouth, West Devon and East Cornwall. Fifty patients at different disease stages will be recruited to the pathway from each area.

Contact information

For more information about this project, please contact Dr Camille Carroll, Associate Professor and Honorary Consultant Neurologist, University Hospitals Plymouth NHS Trust.

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